Cancer Support Now March 18 Conference Breakout Session Vial Of Life

 Vial of Life

 vial-of-life

Tanya R. Lattin, NREMT-P/FC is a nationally registered paramedic and fire commander for the Corrales Fire Department. She has been active with the fire department for 20 years and has been involved in Emergency Medical Medicine for many of those years.

In this breakout session Tanya will cover a number of issues involving medical communications and hints to make your experience with the fire department, ambulance service, or the hospital emergency room more efficient and easier for everyone.

She will cover such things a carrying some important papers with you and present The Vial (or File) of Life, what information is needed to complete it, and how to display it. She will discuss EMS, DNR and MOST orders. Information on choosing home or hospital hospice will be discussed

In this world of smart phones, Fitbits and Jawbones, Tanya will discuss the ICE concept and how to apply it as well as other available options like lock boxes for keys. This session will leave everyone better prepared to face their future!

 

Cancer Support Now’s 6th FREE Annual Conference

Living With & Beyond Cancer

Saturday, March 18, 2017

8:30am to 4:30pm

Central United Methodist Church, 201 University Blvd. NE, Albuquerque, NM

If you have not registered

Registration can be done  online at www.cancersupportnow.org

logo-csn

Cancer Support Now

PO Box 37338, Albuquerque NM 87176

www.cancersupportnow.org

Helpline 505-255-0405

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Laughter Yoga

Lightness in spirit by Eleanor
Lightness in spirit by Eleanor

Did you miss Laughter Yoga at the Conference? Or perhaps you would like to do it again?

 

Laughter Yoga led by Barbara Carroon, certified laughter yoga instructor, is offered at Cancer Support Now’s Fourth Saturday Support Group  April  23, 2016  11am Adelante  in Albuquerque. Call Patricia Torn at 307-3414 or email her at ptorn@comcast.net  to let her know you are attending. Open to all caregivers and survivors.

 

Directions to Adelante 3900 Osuna NE: Take San Mateo exit off I-25. Head west on Osuna. 3/10’s mile west of Jefferson (there is a McDonalds at the se corner of Jefferson and Osuna), on south side of Osuna, turn south on Gluton which runs the along west side of Adelante. First place you can turn left takes you into the west side parking lot of Adelante. Located on first floor. Do not go to the Big doors main entrance. To the right of those doors  enter through the first small door in the middle of the building on west side.

 

 

 

“Wake at dawn with a winged heart and be thankful for another day of loving.”  

KAHLIL GIBRAN  

www.cancersupportnow.org

Like us on facebook    www.facebook.com/cancersupportnow

Patricia Torn

Director of Programs

 

Eleanor Schick

 

Eleanor
Eleanor

I instantly liked Eleanor when I met her. She pays attention to you when you are speaking to her. She cares,  is thoughtful and helpful.

She manages the Cancer Support Now Helpline which is available seven days a week for those in the community who need answers to questions about their or a family member’s cancer.   She is available 9 am to 9 pm 7 days a week by calling: 505-255-0405 or 855-955-3500. This is what she told me about her work with the helpline:

“I refer callers, whether caregivers or patient/survivors to groups, or to one on one support or when neither seems appropriate I provide support to them in the moment, and on an ongoing basis, and whenever they need, sometimes for years.

Though cancer issues are what prompts someone  to make the first call, supporting them becomes whatever they need…whether its referrals to other providers, or ongoing emotional support…about cancer but also about anything.

There are some people who need support but ask me to please call them regularly, rather than initiating the call themselves, and I’m happy to do that.

I support people on hospice and people who have a loved one on hospice, and I continue to support people who have lost a loved one to cancer for as long as they need, sometimes years.

Cancer often brings up issues of PTSD because new trauma tends to reawaken old trauma. I have experience with PTSD and often support people who are working through it. I have referred some with PTSD to counseling, though I continue to support them as well.

I love this work.”

It is easy to see that she does love her work.  Beyond her work at the Helpline she has so much to her credit.

  • She has written and illustrated over 30 published children’s books. When Mama Wore A Hat  was distributed free to cancer treatment centers across the country by Wyeth Pharmaceuticals. It is now distributed free by Cancer Services of New Mexico in every child’s gift bag made available to all adults treated with cancer who have children in their lives.
  • She was a professional dancer in a NYC company.
  • She loves to write. She believes,”writing allows us to follow a train of thought to completion in a way that expresses an inner wisdom that isn’t available in normal conversation.”
  • For 10 years, she was a Writer in Residence in the Rio Grande Writing Project at UNM, a local site of the National Writing Project.
  • She has been a community support for many writers. She has given author talks in Children Literature classes at UNM.  She has done the same in many elementary schools around the city.
  • Her writing experience spawned the idea of writing support groups for cancer survivors and for caregivers. She and Anjie Cureton developed the two ongoing writing support groups  at UNM Cancer Center. They each meet once a week: Journaling Support Group,(caregiver, 255-0405) and Survivors Writing Together (255-0405).

Eleanor wisdom:

“I believe that cancer, even with its traumas and losses, gives us each the chance to connect with a higher wisdom in ourselves if we do the work, and if we reach out for support in it.”

It is easy to see why I like Eleanor so very much.

Living with and Beyond Cancer Conference

dave the date

I went to this event two years ago shortly after I had completed radiation therapy for breast cancer and for thyroid cancer. It was a port in the storm for me. I met many who were having the same experiences that I lived through. I had many questions answered by the excellent speakers.

Last year I joined the board of the sponsoring organization, Cancer Support Now. I was on the committee that planned the conference. I am still on the board and am on the committee for this year’s conference. It will be the best yet. It is also free and includes breakfast and lunch. If you are in NM register and come. I will be at the registration desk so stop by and say hello.

Cancer Support Now

Go to the Cancer Support Now website and check the Spring Conference and a wonderful local cancer support organization right here in ABQ.                      http://cancersupportnow.org/

 Announcing

 Fourth  Annual Long Term Effects of Cancer Survivorship Conference

March 28, 2015   8:30 am to 4:30 pm at
Central United Methodist Church   in Albuquerque

The Conference includes 4 breakout sessions  held twice, morning & afternoon

1. Fatigue/Sleep Issues
2. Lymphedema
3. Creative Movement/Visual Art an interactive, experiential session
4. End of Life Planning and Support

Keynote sessions:

The Morning  keynote speaker is  Michael N. Linver, MD, FACR.
Dr. Linver is a busy
lecturer on mammography, having presented over 900 talks throughout
the United States and in over 20 countries around the world.
The Lunch keynote session is a panel of experts on rehabilitation topics of concern to post-treatment survivors and their caregivers.
Location: Central United Methodist Church,
201 University Blvd. NE,
Albuquerque, NM 1 block north of Central
For more information call
505.307.3414 ore-mail ptorn@comcast.net
Registration is required & opens mid-February

 

Presbyterian Cancer Education Series 6 week workshop

Workshops

 

Silver Linings Survivorship Services: bring out the best you through exercise

Funded by Presbyterian Healthcare Foundation

Presbyterian Kaseman Hospital, 8300 Constitution Ave NE, ABQ, NM 87110   www.phs.org

Six week program, 2 hours.

All sessions include stretching and journaling. Each week is themed with an expert speaker.

Intro, lymphedema, fatigue and activities of daily living, nutrition and dietary considerations, peripheral neuropathy and cognitive impairment, long term side effects and exercise.

Excellent program. Informative and helpful. Well worth it. We all agreed that we learned a lot.

Gretl Berneart OTR/L, CLT-LANA                           Ada Portman, MPT, CLT                  Ann Mustoe, RN ONS

Jan Esparza, RD                  Monica Bartley, Exercise Specialist

I understand that this program will be repeated.  Contact 505-559-8761 to find out more about the workshop

Caring Hearts Support Group starts this week

Caring Hearts Support Group

            Thursday                Nov 6                    at 2:30 pm (lunch arrives at 2pm).

                    Place Aggies Conference Room, Presbyterian Medical Group Building                                           2nd floor, by Oncology waiting room

This is a longstanding group facilitated by Eve Concoran, Chaplain.

Call Eric Mehringer  559-8761

Dates:  Nov 6, 13, 20    December 4, 11

All cancer patients and loved ones are welcome

I started attending this group in February. It has helped me in so many ways. A big one is that it has helped my process. I was hit with severe RA and two cancers within 11 months of each other.  Tough to assimilate surgeries, radiations, tons of meds. Total life change.  This group is amazing. It also offers resources and friendships. Kindred spirits. Come join us.

Bring out the best you through exercise workshop

Recovering from cancer,  Addressing  the issues

Presbyterian Kaseman Hospital  >>open to all cancer patients>>Wednesdays 1-3>>                        call  505-559-8761 to join group or come to an individual class. FREE and Supportive +++good for any level of ability

10-1-14                                                                                                                                          Lymphedema discussion                                                                                                                             Ada Portman, MPT,CLT and Gretl Bernaert, OTR/L,  CLT-LANA                                                                Activity:   therapeutic exercises

10-8-14                                                                                                                                                               Fatigue and activities of daily living                                                                                                          Overview, management :     Ann Mustoe RN, ONS and Gretl Bernaert, OTR/L,  CLT-LANA                 Activity:    Chair exercises

10-15-14                                                                                                                                                              Nutrition and dietary considerations                                                                                               Overview,:   healthy eating, weight gain/loss Jan Esparza RD                                                                      Activity:     nutrition game and circuit training

10-22-14                                                                                                                                                             Peripheral neuropathy  and cognitive impairment                                                                              Overview, management     Monica Bartley, exercise specialist  and Ada Portman MPT, CLT               Activity:       balance class and cognitive exercise with movement

10-29-14                                                                                                                                                              Long term side effects and exercise                                                                                                           Bone:    Gretl Bernaert                 benefits of exercise                    estrogen blockers                             Activity:  low impact aerobics

All classes also include breathing and stretching and journaling

After cancer treatment what next?

Surviving Cancer is a tough trip.   After the treatment is done,  before the next tests,  there will Couragealways be the worry that the cancer will come back.  There will be the worry that a new one will soon reveal its ugly form.  After all, the body betrayed itself once.

Then,  after all the dust has settled and friends and family have disappeared back into their own lives,  the long term effects of treatment settle into roost.  Fatigue.  Fatigue and more fatigue.  So common.  So very hard to deal with.  Chemo brain. Peripheral neuropathy.  Feeling fragile.  Being fragile.  Reality.  Then there is the huge financial upheavals.

Maybe a visit to the Caring Hearts Support Group at Kaseman in Albuquerque is in order. This group embodies what human spirit is all about.  A  group sharing a common experience, meeting for a late lunch, a presentation by a medical oncology specialist, time for talking. People who understand your issues and are willing to help.  Be brave come for a visit.

Caring Hearts Support Group meets in six week blocks. This block started last Thursday. On Thursday, 2:30-4.  Lunch is served at 2 and included. The Cancer Center at Kaseman. Open to all cancer patients.  Call Eric at 505-559-8761 for more info.

Cancer Club Thought of the Day: The Doctor Appointment

cancer club thoughts

All of us who have a serious disease that may be chronic or may be life threatening are a little nervous when we go for a doctor’s appointment.  We may get more bad news.  We may have to make another decision.  We may have an issue that requires us to be assertive, like questions about what is going on.

And here we are:   in  The Doctor’s Office. 

I do mean the place they park you after they get your weight.  It’s like being in a foreign land. I was thinking bus station, but maybe not.  There is the familiar computer. The chair for the Doc. The chair for you.  There is the exam table.  The sharps container is on the wall. There is the awful gown you are expected to put on.

First tip

The nursing  assistant takes your temp, BP and and asks all the standard questions.  Have you fallen in the last 30 days?  Do you feel safe in your home?  I do wish they would check the notes from the last visit.  She is only vaguely interested in your responses so  my first tip is to save your energy for the Doc.

Next:   Be a pro

After a few minutes, there is the knock on the door.  Your smiling, energetic doc appears on the scene.  He wants you to have a satisfying  experience with in your 20 minutes and you do have his full attention.  Tip number 2 is to seize the moment and use your time wisely.  You are now on the clock.  Being nervous at this point is easy to understand unless, of course, you are a seasoned pro yourself and know exactly what you want from this visit.

Have a plan

Start with an fact sheet of your health situation.  On it have  a summary of your disorders. For each,  list  date of onset,  dates of surgeries,  treatments,  the drugs that you are taking for each disorder.    RA drugs under the heading of Rheumatoid Arthritis. Breast Cancer drugs under the heading of breast cancer. And so on.  I also have my latest  A1C and new vaccines or tests. This fact sheet is dated and is only changed when something on the list changes. Easy. I keep the sheet  in my purse and in my journal.  I am the  leader of my medical team.  I need to know what’s going on.

It is very important to make a list

The day before my appointment I review my fact sheet.  I make a list of topics I will need to have addressed at my appointment.  I usually use a 4×6 post-it note and attach it to my fact sheet.  I prioritize the list in order of importance. I also add drugs that will need to be refilled.

Your doctor wants to help you

Prepared with  information and an  agenda, plan in place. Pen ready for notes.  My doc can now use his time to help me.  He’s not a mind reader. He doesn’t have the memory of an elephant. But he has much knowledge and can be very helpful if given the opportunity.